My First Time

No matter what you are doing, the first time is scary, awkward, and uncoordinated.

During training, I sort of did it, but Maureen was coaching me all the way. Even so, the process is complicated and involves many steps. By no means was I confident about doing it myself. When it became time to refill insulin and change out the infusion set, I was so nervous! I had printed instructions with steps and pictures. Unfortunately, steps were missing. The transition steps, from one step to the next, were not shown. I guess my trainer guided me through the transitions. I should have taken notes.

I wanted to call Maureen, but I would not let myself. I studied the documentation, user manual, handouts, and even went to the website and watched videos. All that effort was not as helpful as I hoped. I was just going to have to suck it up. I had to get good at this task because I had to perform it every 72 hours. Yep, every three days. I had to take this assortment of medical parts and get them to work with the black box (a.k.a. device).

Before I can even begin, I have to unhook the tubing from my body. Then, remove the insulin cartridge from the device. Now, rewind the cartridge compartment. I found the command on the device’s menu and tapped it. Immediately, I heard the whir of something rewinding. Hey! It’s doing it! I celebrate this small victory before I move on to harder steps.

I discovered that this device is VERY impatient. I will be following along its instructions, but by the time I am ready to proceed, it is steps ahead of me. It will not wait for me to catch up OR let me start over. I called the Bionic help desk, hoping they could tell me how to back up and start fresh. They did me one better. With questions, they determined where I was and what I needed to do next to make things right. Unfortunately, inserting the tubing connector into the vial of insulin and locking it in place just wouldn’t work. I remembered how to do this step, and yet I could not convince the connector to play well with others.

I was sure I was screwing up, so I didn’t think to try a new connector. I did, and it popped in on the first try. What a relief! Now comes the hard part. I need to attach the device to me. The documentation tells me to “insert the infusion set”. Like it’s that simple. Ha!

Remember the circular container I opened to get the tubing out? Well, now it looks like this. And yes, the vertical thing in the center is the needle that will be inserted into me to place the cannula at the end of the tubing that carries the insulin.



Now I have to prime the inserter. Which means I have to pull the white section out of the bottom of the blue circle, making sure my fingers are on the grooved sides of the circle, while I pull the white center back through the bottom.

Primed for injection

Now it looks like this:

While putting the blue circle against your skin, one has to hold the sides where the smooth buttons are. They are fairly invisible, so you have to feel them.
Prepare yourself to be injected. This happens when you push in the two buttons simultaneously.

Ready… Set… Ouch!

Now you must gently remove the injector from your implanted infusion set. The tubing (I refer to it as my leash) is 23″ long. For being almost 2 feet, it is a short leash. For example, I have to unhook the tubing before using the restroom. There is a danger of pulling the device off the counter and breaking it. Or worse, it goes for a swim in the toilet.

Now that my bionics are up and running, I need to clean up the trash from the packaging and get the needles into a Sharps container. (Count your blessings if you don’t know what that is)

Stay tuned and find out if the third time really is the charm…

TTFN

Let’s Try This Again

After a few days of rest, I feel better, and my brain seems to be functioning. My training is scheduled for this afternoon, and I have been going over the to-do list. I finally weighed myself, and it was as bad as I thought. Good thing only my pancreas needs to know.

I got all my homework done. Now all I have to do is get more nervous than I already am. I may have mentioned before that I hated change. Especially life-as-I-know-it changes, such as going bionic. That is the company’s catchphrase: Go Bionic! Like it’s going to be fun.

It is overwhelmingly not fun. The bionic pancreas (hereafter referred to as the ‘device’) is in its learning mode. For the first 2-3 weeks, it analyzes my daily patterns of carb intake and meal timing. I need to follow rules to help the device learn. If my blood sugar gets too low, I am alerted by the device to treat this condition. Not a biggie – my glucose monitor alarms when I’m going low, so I am used to alarms going off. The difference is that the new device has a bunch of rules about how I am to treat the low, so I don’t over-treat and make the sugars go way high.

I don’t know how this device is going to learn something in 2-3 weeks that I have been trying to learn for years. Sometimes the sugars go WAY UP even when I conservatively treat them by the book. When the sugar is too high, I need insulin. 9 times out of 10, the high would respond, then end up dumping me into another low. Up, Down, Up, Down, repeat. All day and night long. I am exhausted most of the time. And I look it.

In a semi-perfect world, my bionic pancreas will keep my sugars more balanced and longer in the range they are supposed to be in. This will not cure my T1 Diabetes, but it should help a lot.

To be continued…

Prep Day 2

Last night’s sleep was nonexistent. Although I was curled up on my comfy couch, next to a warm fire, cough syrup did not ease my coughing spells. And my asthma meds act like adrenaline, so when my cough calms down, I am wide awake.

Between 5:00 am and 5:30 am I must have dozed off. Only to be rudely awakened by sudden thunderstorms. Thor was undeniably angry about something. And the fire had gone out.

Hubby and I ran into each other in the hallway. “Where are you going?” he asked.
“To bed to snuggle with you and get warm.”
“Okay then,” he said, taking my hand. I slept in peace for over an hour.

While drinking 2 cups of coffee, I reviewed my prep list and set up my pancreas charger. Then I looked around in the manual, which frightened me because it listed warning after warning and barely mentioned how to operate the thing. I wasn’t allowed to operate it until my training session, so I stopped trying to learn anything.

I took a mental break and checked my email messages. Only one message was really for me. The other 25 were phishing and spam. Ho Hum. Meanwhile, my smartphone was charged to 100%, so I went to the App Store and installed the Pancreas app.
Hey! That went smoothly. Now I have an account that actually works. The next thing is to go try the iLet simulator website. And no, I have no idea what this does.
We’ll check it out after my nap…

Note: After the nap, I contacted Maureen and postponed my training. I felt awful, and why expose her to whatever-the-heck germs I had?

To be continued…